Community
National Data
The 2016/17 National Survey of Children's Health identified the following:
• Over 13.7 million children, representing 18.8% of all children in the United States, have special health care needs based on the HRSA definition.
• Over 11.6 million children, representing 84.3% of all children and youth with special health care needs (CYSHCN) in the United States, do not receive care in a well-functioning system.
State Data
As of 2016/17, the National Survey of Children's Health estimated 106,845 children live with special health care needs in Nevada, representing 15.9% of all children statewide.
AMCHP System Outcomes for CYSHCN
1. Family Professional Partnerships: Families of CYSHCN will partner in decision making at all levels and will be satisfied with the services they receive.
2. Medical Home: CYSHCN will receive family-centered, coordinated, ongoing comprehensive care within a medical home.
3. Insurance and Financing: Families of CYSHCN have adequate private and/or public insurance and financing to pay for the services they need.
4. Early and Continuous Screening and Referral: Children are screened early and continuously for special health care needs.
5. Easy to Use Services and Supports: Services for CYSHCN and their families will be organized in ways families can use them easily and include access to patient and family-centered care coordination.
6. Transition to Adulthood: Youth with special health care needs receive the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence.
7. Cultural Competence: All CYSHCN and their families will receive care which is culturally and linguistically appropriate.
Resources
Family Navigation Network: Family Navigation Network | Nevada Center for Excellence in Disabilities | University of Nevada, Reno (unr.edu)
Nevada Children's Medical Home Portal: https://nv.medicalhomeportal.org/
Nevada Project ASSIST: http://dhhs.nv.gov/Programs/IDEA/ProjectASSIST/
Katie Beckett Medical Coverage
Cobertura Médica de Katie Beckett
Nevada Home Visiting Resource Guide
Nevada Parents Encouraging Parents, Parents Educating Professionals, and Professionals Empowering Parents (PEP): http://www.nvpep.org/
Got Transition Health Care Transition: https://www.gottransition.org/youthfamilies/index.cfm
Children's Cabinet: http://www.childrenscabinet.org/