The Purpose of a Cancer Registry


The Purpose of a Cancer Registry

The primary purpose of the Nevada Central Cancer Registry (NCCR) is to collect and maintain a record of reportable cases of cancer in the state. The data is used to evaluate the appropriateness of measures for the prevention and control of cancer and to conduct comprehensive epidemiological surveys of cancer and cancer-related deaths. Cancer case data is collected from hospitals, medical laboratories, other facilities that provide screening, diagnostic or therapeutic services, and providers of health care who diagnose and/or treat patients with respect to cancer. The information on these cases of cancer is reported to NCCR. This is accomplished by abstracting state-required patient cancer information from medical records. Collected data is entered into a specialized database where additional case information is added, edited, and consolidated for accuracy and completeness.

 

Timely and complete cancer data are used to evaluate the appropriateness of measures for the prevention and control of cancer and conducting comprehensive epidemiological surveys of cancer and cancer-related deaths statewide and nationally.

 

The NCCR is a population-based registry that maintains data on all cancer patients within the state of Nevada. The Registry began collecting cancer incidence data in 1989. In 1995, the NCCR began receiving funding from the National Program of Cancer Registries (NPCR) through the Centers for Disease Control and Prevention (CDC).

Who Must Report?

The Nevada Central Cancer Registry (NCCR) is regulated by both Nevada Revised Statues (NRS) 457 and Nevada Administrative Codes (NAC) 457.  State regulation made cancer a reportable disease in Nevada effective 1983. Compliance with cancer reporting will ensure complete, timely, and accurate surveillance data and enable the registry to produce meaningful cancer statistics for public use.

 

The types of persons and facilities required to report:

  • Health Care Facilities
  • Providers of Health Care who diagnose or provide treatment for cancer
  • Medical Laboratories
  • Other facilities that provide screening, diagnostic or treatment services

 

    How To Start Reporting?

    Contact the registry by email: dpbh.NCCR@health.nv.gov or by phone 775-684-5968

    Reporting Options:

    Option 1: Secure file upload in text, excel, HL7 or NAACCR format

    Option 2: Online abstracting to the NCCR. Web Plus is a web-based application that collects cancer data securely over the public Internet. Web Plus is a web-based abstracting computer program available at no cost, and no software is required to be installed for its use. It is available over a secure Internet connection and access is controlled through NCCR’s assignment of user IDs and passwords. Supporting text is required to be included in the abstracts to verify histology, staging, etc.

    Option 3: Paper Reporting: Hard copy submission via mail, fax, or file upload of the NCCR cancer incidence reporting form. Supporting documents are required to be included in the abstracts to verify histology, staging, etc.

    Each reporting entity must complete the specific “Demographic Form”. This form provides the registry with basic information and identifies your option for reporting. Once the completed “Demographic Form” is returned the registry will provide additional reporting depending on the reporting option selected.

      

     

    What Information Must Be Reported?

    The NCCR operates under the Standards set by the National Program of Cancer Registries (NPCR) and the North American Association of Central Cancer Registries (NAACCR).

    Information collected includes:

    • Patient information (e.g. age, gender, race, address at diagnosis, place of birth, marital status, occupation and industry)
    • Anatomic site of the primary tumor
    • Histology (cell type) of the cancer
    • Stage of disease at diagnosis
    • First course of treatment
    The NCCR understands that not all reporting facilities and providers have all collected information available.  Special abstracting forms and instructions are available for specific reporting entities under the General Information/Cancer Reporting section.

      What Cancers Are Reportable?

      Public Law 102-515 and its amendments identify reportable conditions for the National Program of Cancer Registries, therefore Nevada is following the International Classification of Diseases for Oncology classification system to determine reportability.

      • All diseases with a behavior code of "/2," in situ disease, or "/3" malignant disease
      • All solid tumors of brain and central nervous system, including meninges and intracranial endocrine structures with behavior codes of:
      • "/0" benign disease
      • "/1" disease of uncertain malignant potential
      • "/2" in situ disease
      • "/3" malignant disease

           This includes:

      • Diagnoses that include the following terminology are malignant neoplasms and are Reportable:
      • Cancer                              Carcinoma 
      • Carcinoma in situ               Malignant 
      • Leukemia                          Lymphoma 
      • Melanoma                         Sarcoma
      Malignant diagnoses that are not histologically confirmed, but are described by one of the following ambiguous terms, are considered confirmed cases and are Reportable:
      • apparent, apparently         most likely 
      • appears                            presumed 
      • comparable with               probable, probably      
      • compatible with                suspect, suspected 
      • consistent with                 suspicious (for) 
      • favors                              typical of          
      • malignant appearing  
          Basal or squamous cell carcinoma originating in mucoepidermoid or genital sites. 
          This includes VIN III, VAIN III, and AIN III
      • A clinical diagnosis or any case that is stated to be cancer by a recognized medical practitioner, even if there is no histologic or cytologic confirmation.
      • Any Reportable cancer listed on the death certificate
      • Patients undergoing prophylactic or adjuvant therapy for a Reportable condition