Child and Youth with Special Health Care Needs (CYSHCN) - Community Resources
The 2009/10 National Survey of Children with Special Health Care Needs identified the rates of prevalence as the following:
• 10.2 million children, representing 15 percent of all children in the United States, have special health care needs based on the MCHB definition stated above.
• More than 20% of US households with children have at least one child with special needs
• 16% of CYSHCN are reported to not receive all the services they need
Nevada estimates 82,108 children live with special health care needs in Nevada.
The Nevada CYSHCN program promotes quality well-being and support for children and their families, under the direction and within the guidance of the state and federal budget.
Six Core National Outcomes for Children and Youth with Special Care Needs
1. Families of children with special health care needs will partner in decision making at all levels, and will be satisfied with the services they receive.
2. All children with special health care needs will receive coordinated ongoing comprehensive care within a medical home.
3. All families of children with special health care needs will have adequate private and/or public insurance to pay for the services they need.
4. All children will be screened early and continuously for special health care needs.
5. Services for children with special health care needs and their families will be organized in ways that families can use them easily.
6. All youth with special health care needs will receive the services necessary to make appropriate transitions to adult health care, work, and independence.
A successful transition from pediatric to adulthood is vital when maintaining health and quality of life for youth with special health care needs. Nevada provides a workbook designed for CYSHCN to help with tools planning skill building and goal setting for education, independent living and healthcare. The transition book will assist families and youth to transition at a smooth and progressive rate, accessible through the link provided.