Rare Disease Advisory Council - 2025 Meeting Schedule

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Rare Disease Advisory Council - 2025 Meeting Schedule
DateLocationAgendaMinutesAttachments
Rare Disease Advisory Council (RDAC) - Main Council Meeting
08/01/2025
09:30 AM
video - Join TEAMS: Meeting ID: 237 259 557 090 Passcode: Mn3AU6jM -
phone - +1 (775) 321-6111 Phone Conference ID: 174 472 602# -
08.01.25 RDAC Meeting Agenda_Finallenmeldy-USPI-FDA-2024Mar18-ADAMetachromatic Leukodystrophy-LenmeldyTM and NSNV-RDAC_Survey_Summary_Report_2026-2027RDAC Meeting Minutes_6-6-2025_FinalDraft
Rare Disease Advisory Council (RDAC) - Subcommittee Meeting
07/11/2025
09:30 AM
video - Join TEAMS: Meeting ID: 245 387 510 276 Passcode: oJ37EW9u -
phone - +1 (775) 321-6111 Phone Conference ID: 728 234 817# -
07/11/25 RDAC Subcommittee Meeting Agenda 07.11.25 RDAC Subcommittee Meeting Minutes-Final DraftNV RDAC Survey Summary Report 2026-202703/07/25 RDAC Subcommittee Meeting Minutes-Final Draft
Rare Disease Advisory Council (RDAC) - Main Council Meeting
06/06/2025
09:30 AM
video - Join TEAMS: Meeting ID: 237 259 557 090 Passcode: Mn3AU6jM -
phone - +1 (775) 321-6111 Phone Conference ID: 174 472 602# -
06.06.25 NV RDAC Meeting Agenda-Main Council Meeting06.06.25 RDAC Meeting Minutes-Final Draft02/07/25 RDAC Meeting Minutes-Final Draft-Revised04/04/25 RDAC Meeting Minutes-Final DraftNV RDAC Member Survey 2025Evans CV-NV RDAC-RedactedRDAC LOI-EvansDr. Vincze Redacted ResumeP. Niedermeyer Redacted ResumeC. Thielst Redacted ResumeNV RDAC Awareness Campaign Plan
Rare Disease Advisory Council (RDAC) - Main Council Meeting
04/04/2025
09:30 AM
video - Join TEAMS: Meeting ID: 237 259 557 090 Passcode: Mn3AU6jM -
phone - +1 (775) 321-6111 Phone Conference ID: 174 472 602# -
04/04/25 RDAC Meeting Agenda-Revised04.04.25 NV RDAC Meeting Minutes-Final02/07/25 RDAC Meeting Minutes-Final DraftNV RDAC Member Survey 2025NV RDAC Recommended List of Rare Conditions for DashboardEvans CV-NV RDAC-RedactedRDAC LOI-EvansDr. Vincze Redacted ResumeP. Niedermeyer Redacted ResumeC. Thielst Redacted Resume
Rare Disease Advisory Council (RDAC) - Subcommittee Meeting
03/07/2025
09:30 AM
video - Join TEAMS: Meeting ID: 245 387 510 276 Passcode: oJ37EW9u -
phone - +1 (775) 321-6111 Phone Conference ID: 728 234 817# -
03/07 RDAC Subcommittee Meeting Agenda03/07/25 NV RDAC Subcommittee Meeting Minutes_Final01/05/24 RDAC Subcommittee Meeting Minutes_Final Draft11/01/24 RDAC Subcommittee Meeting Minutes_Final DraftNV RDAC Strategic Plan 2023-2025
Rare Disease Advisory Council (RDAC) - Main Council Meeting
02/07/2025
09:30 AM
video - Join TEAMS: Meeting ID: 237 259 557 090 Passcode: Mn3AU6jM -
phone - +1 (775) 321-6111 Phone Conference ID: 174 472 602# -
02/07 RDAC Meeting Agenda02/07/25 RDAC Meeting Minutes-FinalNunes Curriculum Viitae (CV)12/06/24 RDAC Meeting Minutes-Final Draft